A 15kg gain

No, not me (thankfully), but my son. 15kg since Christmas. Since he had the tube fitted. I cannot tell you how unbelievably happy this makes me. 5 months ago I thought I would be saying goodbye to him. He had been going downhill for several months, he had become a walking skeleton. No energy, depressed, ill, ill, ill.

But now – my god now everything is so much better. He has gained a huge amount of weight since starting overnight tube feeds, we have been on holiday to Greece (photo above) and he has a tan, he is doing exercise at the gym. I literally cannot believe the transformation and I thank the universe daily. I know, absolutely, that with cystic fibrosis this too can change in an instant, but for now I am happy and utterly, utterly relieved.

As ever while my son is trying to gain weight I am trying to lose it. A month ago I wrote about the dreaded plateau and how I was hoping to shift things by doing a 48 hour fast. Well… roll of drums…. I actually did it. A 48 hour fast!! This to my mind is absolutely amazing. I felt so proud of myself I did another 36 hour one a few days later. But I found that one much harder for some reason. The upshot is I have lost….. nothing. Aargh! Nothing. Yes I did lost weight initially but even though I carried on with low carb food the weight still went back on and it has made no difference long term.

If I view it that it’s a good way of giving my pancreas a rest and therefore might help with insulin resistance then I might try it again. In terms of weight loss it doesn’t seem to work for me. But probably if I did it regularly it would. I’m just not sure I’m ready, yet, to fast regularly. I like my food too much! But… I can absolutely see that it would be a good way of dealing with stress. I get that. Something to do with the discipline of it all maybe.

My new weight loss MO is to have bits cut off me, by stealth. A week ago I had a lipoma removed. This fatty lump had been growing in my knicker line for 2 or 3 years and it was starting to get irritating. So I’ve paid to have it removed. What felt like a relatively small lump was actually huge in terms of the fat that came out of it!

lipoma

This be the lump!

Next week I am having my breasts reduced. Yep, that time has come. I’m quite looking forward to it. I think. I am looking forward to not having these pendulous things hanging in front of me. I am very grateful to them for being a positive asset when young but they are no longer fit for purpose. They need to go.

By way of preparation I am back to eating low carb, lots of veg, very little alcohol. Sob.

Yesterday’s menu

Br: fried halloumi and eggs

Lunch: huge salad with chicken, ham, olives and French dressing

Dinner: Pork chop and roast pepper traybake with leek and cabbage carbonara and cheesy aubergine bites. Yum.

Gains… and desperately worrying losses

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Life is a bitch and this is why: while I am trying, very hard, and with painfully slow success to lose weight, my son is also losing weight. Except that he’s not trying. He’s trying to do the opposite in fact. His weight is now so low that I wonder if he can come back from this.

I lie awake at night worrying, worrying, worrying. It all started with the hideous bug Mycobacterium Abscessus which he started growing about 4 years ago. At first he kept on top of it – ish. Then, as more and more drugs have been tried to get rid of it my son has become more and more nauseous. The side effects of these very powerful antibiotics are bloody awful. The jury is still out as to which is worse – the symptoms of the illness or the side-effects of the medication. And worse still, there is no guarantee the medication will work and it often doesn’t. In my son’s case it hasn’t.

But still we try. Meanwhile A gets thinner and thinner and now just looks so ill and is a bag of bones. I literally cannot bear to look at him. He is in hospital now. Partly routine, he has to go in for IV antibiotics about every 4 or 5 months, but partly because I actually can’t cope with his being at home. I cannot watch him not eat. He won’t be here in 6 months’ time if he doesn’t put on weight.

There is hope. He has agreed to have a gastrostomy tube fitted so that he can be fed overnight straight into his stomach. But even that’s not straightforward. The operation itself, although a very simple one, could cause an infection which in turn could lead to sepsis because A has exhausted every single antibiotic there is. Once the peg is fitted he could still feel very sick and be unable to tolerate overnight feeds.

If someone had told me when I was younger that of the three children I would give birth to two of them would end up being tube fed for entirely different reasons I would a) never have believed them, and b) made sure contraception going forward was ultra robust. Almost worse than your child dying is watching your child suffer I think. I still have nightmares about the suffering my eldest child endured before his death.

But, this blog is supposed to be about my dietary successes or failures so, moving on: I am doing pretty well! In fact, I think trying to lose weight and doing exercise are a distraction from the pain going on around me in the rest of my life. I dread to think what I would be like now if I was going through this but still very fat and miserable about that too. Hideous.

I have now lost 18 kilos. Yes! 39.6lbs! I am two-thirds of the way there. My breasts are still massive unfortunately. I veer on a daily basis between deciding I definitely am going to have them reduced in size by a kindly surgeon to deciding that they’re not actually that bad (I have now discovered I am a 36GG not a 42DD so yes they are that bad) and it would be a complete waste of £6000 plus the recovery time, the scars etc, etc. Currently I’m thinking not to have it done.

They do really get in the way when I exercise though and being the age I am they are more like large Spaniel’s ears when I’m not wearing a bra rather than buoyant and sexy orbs. It’s not a good look. My breasts alone in a way are what incentivises me to keep going. If you are genetically pre-disposed to store a lot of fat in your breasts, which I clearly am, then the body will hold on to that fat until it has no choice. So in other words if you have large breasts then that area will be the first to get bigger if you gain weight and the last area to get smaller if you lose weight. If you have small breasts then the opposite is true. So… if I lost more weight would my breasts then get smaller? Properly smaller? It would be fantastic if they did so I’m going to give it my best shot. Though as I’m losing about a pound a month by the time I’ve lost the requisite amount of weight to make a difference I will probably be 87 and past caring.